Downward Spiral

It’s always something around here. As I reported in my last post (a lifetime ago, I know, I know), Owen has a Chiari Malformation. We met with the neurosurgeon just after Thanksgiving, and he didn’t seem to concerned. Just to be safe, we pushed for a new MRI, and he agreed.  We got a call from the neurosurgeon a few days before Christmas and it was NOT the call I was hoping for. Owen needs surgery. The sooner, the better. He said that on average, Chiaris tend to be about 3mm. At that size, most patients don’t require surgery. Owen’s measured 15mm and is restricting the fluid around his brain. On top of that, they think he may have sleep apnea, so we have to do a sleep study before surgery.

How do you get used to the idea of your baby having brain surgery?

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